“Research has found that even with SSDI, 1 in 3 beneficiaries lives below or near the Federal Poverty Level ($11,770 for a single person in 2015), if SSDI were excluded from total household income, fully 7 in 10 beneficiaries would find themselves living in or near poverty.” - ARC of Illinois


  • The State funds 70% of the costs per year, meaning that organizations must fund the missing 30%.

  • There are about $10,000 shortfalls for every individual...How does that affect each individual?

    • Organizations are shutting down homes that house 4 people or less and consolidating making 7-15 person homes.

    • Research shows that the quality of life for people with disabilities is improved when they live in homes of 4 people or less.

  • Why can’t their parents fund the missing 30%
    • There are an estimated 641,000 adults aged 60+ with cognitive and other disabilities (e.g., cerebral palsy, autism, epilepsy, traumatic brain injury).

      • This number is projected to double to 1,242,794 by 2030, coinciding with the aging population of baby boomers born between 1946 and 1964. [Heller, T. (2011). Strength for Caring: Older Adults with Developmental Disabilities and Their Aging Family Caregivers.]

    • Families are still the primary caregivers for adults with developmental disabilities and are themselves aging. About 76% of individuals with developmental disabilities reside at home.

      • In 25% of these homes, the family caregiver is over 60 years of age.

      • The average age of the care recipient with a developmental disability is age 38. [Heller, T. (2011). Strength for Caring: Older Adults with Developmental Disabilities and Their Aging Family Caregivers.]

    • “Research also indicates that more parents with [children with] disabilities are unemployed (48 percent versus 22 percent).” -National Council on Disability

    • “Parents with disabilities and their families are not protected from this harsh reality. In fact, the most significant difference between parents with disabilities and parents without disabilities is economic: The median family income for parents with disabilities is $35,000, compared with $65,000 for parents without disabilities.”-National Council on Disability